Today, Tim received an unexpected phone call from a his friend who is a NP in a NICU. He wanted to know if Tim would talk to the father of a baby that was born with cCMV. Of course Tim did. Baby "Addison" was born 2 wks ago with bilateral brain calcifications (which was one of Brooke's many complications). "Addison's" parents are considering starting her on oral Ganciclovir. This will be a new clinical trial headed up by Dr. David Kimberlin (the infectious disease MD at Children's who studies cCMV and also has many world known publications). Brooke had the PICC line (IV) infusion. Which was a nightmare in itself with the IV. So Tim told them to do all they could give the Ganciclovir, do early intervention and what ever they could.
I am in hopes Baby "Addison's" mom will call me. I would love to tell her Brooke's story and let her know there is hope. If you are reading this please say a little prayer for Baby "Addison" and her family. They are in for a long road of uncertainty and what if's.
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